Thank you for your interest in taking part in this survey.

We are inviting people living with polycythaemia vera (PV) to share their experiences of living with the condition and its treatment. This study is being conducted by the research team at Patvocates in collaboration with patient organisations and sponsored by a pharmaceutical company called Takeda.

The survey asks about topics such as:

• how PV affects your daily life
• your symptoms and quality of life
• your experiences with treatment, including side effects
• the time and effort involved in managing PV
• your experiences with healthcare

By sharing your experiences, you will help us better understand the real-life impact of PV. The findings may help improve the treatment and care of people with PV and contribute to future research on PV.

Please answer based on your own knowledge and experiences. If you don’t know, please use that response option, where applicable.

The survey takes approximately 40 minutes to complete.

Before the main survey, we ask you to complete a brief set of screening questions. These questions help us determine whether you can take part in the study and understand who is participating.

Thank you for taking the time to share your experiences. Your voice is the main part of this research.