Access to sexual and reproductive health information for adolescents and young adults with blood conditions

The purpose of this survey is to gather younger haematology patients’ perspectives on sexual and reproductive health, especially concerning the access to information and support. Under haematologic blood conditions, we consider both non-malignant and malignant (cancerous) conditions.

People aged between 18 and 35 years can enter.  All genders are welcome to participate.

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Procedure: You will first answer a few screening questions. If you meet the study criteria, you will be directed to a consent form, and if you have agree to participate, you will enter the survey automatically.

It will take you approximately 10-20 minutes to complete the survey. Please don’t use your browser’s back navigation while in the survey. 

Sharing study results: The data collected up to 31st May were used to inform an AYA session at the EHA 2025 congress (June 12-15) on the sexual and reproductive health impacts of treatment for malignant and non-malignant blood conditions. All data, including data collected after the EHA 2025 congress, will be used to provide evidence of AYA treatment views and needs regarding healthcare communication and services. This evidence may be disseminated through websites of patient organisations or at a future congress.

If you want to receive a copy of the study results via email, you can leave your email address at the end of the survey. We will use your email address only for this specific purpose and delete it from our records afterwards. 

Confidentiality: Your privacy is very important to us. Your answers will remain anonymous, and no identifiable personal information will be collected unless you voluntarily provide your email address to receive study results. Data of participants who left the survey before reaching the end will not be kept and will not be part of the analysis. 

All data collected will be kept strictly confidential and securely stored on password-protected computers, in compliance with GDPR regulations. Data will be stored in protected cloud servers based in the EU region and will be retained for one year after the completion of collection. The results will be shared with Charles McGrath (Acute Leukaemia Advocates Network) and Yunus Borowczak (CML Advocates) for analysis and presentation.